Tonsils Takedown Round 2!

It’s round 2, I’m backed against the ropes, bruised and exhausted . . . sighs . .

Last Wednesday I felt so much better that I stupidly went to work for a half day, but I felt good! Slept well, throat wasn’t sore, I was happy. When I left work, I went to the grocery store, cooked a pot-roast with potatoes and cleaned my kitchen, by 9pm I was tired. As I sat on the couch watching TV I started itching; immediately thinking it was stress and I thought it would stop soon. An hour later, I’m scratching my chin so intensely that the left side of my face is red. For those of you that don’t know what I look like, I am a dark skin black female so for my face to  be red . . . that’s a problem. So since it was now after 10pm and I was itching all over, I called Urgent Care and told them I believe I am having an allergic reaction. They told me to stop taking the Augmentin and take a benadryl if that doesn’t work, come back immediately . After I got off the phone I frantically searched my apartment for allergy meds, but could not find any!  Once i realized I was SOL it was 11:15pm, the skin around my eyes and lips were burning, so I went to the nearby Safeway that claims to stay open until midnight, but the doors were locked. I got back in my car and drove around looking for a 24- hour something! About 2 miles away I found a  24-hour CVS, thank god! Popped a benadryl, and was able to finally sleep closer to 1am . . . .obviously I didn’t go to work the next day.

Thursday morning I went back to Urgent Care and they prescribed a new antibiotic something called “Z-packs” for short. But I didn’t trust it . . .. It will be a year next month that I’ve been living in VA and I have yet to find  a Primary Care Physician (PCP) , which is kind of a good thing, it shows I haven’t been that sick. My PCP is in Maryland about a 35 min drive away without traffic. After I left Urgent Care I called my PCP and asked if I could see her soon, they said sure and I was able to get an appointment that day at 3pm. I tell my PCP of my life experiences in the past few days and she jokes with me saying, “See! you should have came here first, those people in Urgent Care don’t know what they’re doing!” . . . I laughed and said, “Well you guys were not open on Sunday when I could barely swallow” lol. After joking, she said lets take a look at your throat, that smile immediately disappeared. “Krystal your tonsils are still severely swollen, you have to take that new antibiotic they prescribed with a benadryl just in case you might have an allergic reaction.  And I highly suggest you go see the ENT.

Great! . . .  freaking wonderful!! . . . .

She took a few swabs of my tonsils and blood work and I’m currently awaiting the results. Due to the horrible traffic since it is the DMV and a day before the presidential inauguration, it took me 2.5 hours to get to my local pharmacy back in Virginia. By  the time I arrived, my throat was severely swollen I could barely talk.

Today was the last day of taking the antibiotics and my tonsils are still huge and my throat still feels swollen. I cannot afford any additional health expenses. I’m still paying off the root canal and crown that was barely covered by my dental insurance, a $2100 bill. If tonsil removal surgery is not 100% covered, I’m not doing it. I see my PCP again on Friday and if the swelling does not go down by then and tonsils are still infected . . . I just might cry . . . lol

Life is so crazy! My tummywoes are finally calm and I’m seeing my GI this week to discuss possibly going off Humira. But in the past few months other parts of my body  are just falling apart . 2017 has been something else already!! smh

 

It’s been a while . . .

It’s been a while since I’ve written . . . its been a while since i’ve done anything for me. My life for the past few weeks has been devoted to sleeping, paying bills, and work. . . such a drag. When I do go out I’m completely exhausted.

I wish I could say, “At least I’m healthy!” . . . . . .but my immune system is no good! In the past 2 months I have had a case of food poisoning, UTI, and recently my 3rd cold of this year. I have never been so sick, so often. So what’s the deal?

I think it’s the Humira. The bleeding has not been present for about 2 months now, but I’m steady getting sick and my hair is thinning out.  I’ve lost all my prednisone weight but due to stress I sometimes forget to eat and forget to take my meds. Yes I will admit it! I have been slacking in taking my meds, instead of 4 apriso pills a day i’ve been taking 1-3 pills, because I tend to fall asleep or genuinely forget. It’s odd . . .

Hips and knees starting to hurt, but my skin is beautiful, my body looks great, and I feel like im 50 years old. . . . so crazy!

As always I remain hopeful, taking one day at a time!

 

You never know …

I have been living in my apartment for the past 4 months and what I’ve told many of my friends is that I wish I could just move my apartment, because my neighbors drive me crazy. Neighbors across the hall have too many visitors and smoke a lot!. And the older  woman that lives above is always moving furniture late at night and early in the morning. I’ve only spoken to her once before bumping into her today.

I walked to my door and she stopped to say hi, I felt I looked childish with a lollipop stick sticking out of my mouth, but taking it out would have been inappropriate I think lol Any way, she introduced me to her sister and I re-introduced myself, then she proceeds to apologize for all the noise she makes at night, I immediately said no worries, even though I was happy that she acknowledge it and apologized. She then told me  she’s on dialysis and her treatment is at night and showed me her stomach where I assume she inserts the treatment. All this time I thought she was moving furniture, but I believe she was actually moving her machine. God I felt bad, and all I could say is that I’m soo sorry to hear, it then got quiet and I could see the sadness in her eyes, it broke my heart. Since I’m the type of person that hates awkward silence I ended the convo by saying it was good seeing you.

As I write this I’m getting teary eyed and just grateful that my condition is not worst. You would think as a person with a chronic illness I would immediately be more empathetic than others but its still hard seeing people being sick. I feel so silly and immature thinking all this time she was a mad old woman trying to make my life miserable. You just never know . . .

I want to give her something, or drop something at her door so she knows I’m here if she needs help. Any ideas? More than ever I feel propelled to help others who are sick, I know that feeling of loneliness.

As always I take one day at a time and remain hopeful.

A year ago . . .

I just realized exactly a year ago today I was in the hospital. Around this time last year was the evening of my 4th day in the hospital. I was hoping and wishing to be discharged soon. Lucky for me I was discharged the next day . . and haven’t been back since thank God! *fingers crossed*

A year ago I was afraid to eat and didn’t see anything wrong with not eating for a day or two. Not eating meant no pain, no 10-20 trips to the bathroom, I felt normal when I didn’t eat. . . scary thought right? But when you have Inflammatory Bowel Disease (IBD) your life is the opposite of normal.

2016 is the first year I did not make any New Year’s Resolutions.  2015 was such a low for me I could not imagine life being any better, had to accept that I will live with this illness for the rest of my life . . .sucks! But today, I am not in a hospital bed!  Gotta enjoy the good days! So what has improved and what needs improvement since last April:

  • Health – Improved. I think my mini flare is going away, feel better than I did a month ago.
  • Professional life – eh Improved? . .. I’m in a better situation  than where I was last year . . don’t have to worry about people stabbing me in the back , kinda nice lol
  • Living situation- Improved. Much better, still waiting on my couch to arrive . . lol
  • Social life – Needs improvement. First step is not to make it last on my list. 2nd, get over my social anxiety,  3rd,  find a hobby,  and 4th, make new friends.

I was so frustrated last week that I was in tears, called my grandmother and she said “This too shall pass” . . . “Last year you were so sick and in the hospital and you got through it, you are a lot stronger than you think you are, remember that”  . . . thank you Grandma 🙂

Demand RESPECT . . .

When you’re sick you would expect out of all people your doctor would be the most compassionate, but it’s not always the case.  As a patient you spend so much of your time and money to seek professional help to get healthy, but then you start to realize your illness is just a paycheck for some. How disturbing and disrespectful! So . . . since they view your illness and regular appointments as transactions, well I need to view them as a business too.  I am taking time out of my day and money out of my pockets to see a doctor for a service. I expect quality service as soon as I walk in. If I continuously receive bad service I will take my money and time elsewhere. . I know this is easier said than done especially when seeing a GI since there are so few GI doctors, but as patients we have to demand respect, and our questions/concerns should be taken seriously. We’re NOT craving for attention, we’re sick!!!

I found the below clip from the Golden Girls on my fbook newsfeed, it spoke volumes for me and has given me new-found confidence whenever I visit a doctor. Please watch and share!

GI is sweating . .

I received two responses to the stern message I sent to my GI’s office. The first response was from the PA who stated, I have forwarded your concerns to Dr. F. and he will see you from now on for treatment. Thank you!! No offense to PAs out there, but I wasn’t paying money to see a PA. Then I received two responses from my GI, and he started the first message soo well!! “Hi Crystal”, thanks for spelling my name wrong! lol But I can’t be mad, when I was speaking with my insurance company I said his first name was Steven, I was  corrected. It’s bad when you don’t know your GI’s first name, that’s a problem!! In the message he continued to talk about how he never disagreed with the GI in the hospital that stated I have crohn’s (lies), and all this information that I never heard from him that was all crohn’s related. When I asked him multiple times in the past about which IBD I have he could never say. But push come to shove, all the meds i’ve been on for the past 9 months have been for UC, so I understood his point that Crohn’s is most likely since those medications haven’t worked.

Then out of nowhere! He wanted me to come to the office to see him the next day ! I could not believe that my GI was finally making time to see little ole me. Unfortunately, I am unable to drop everything to see him so I told him how I cannot come to the office until November because my schedule is not flexible due to my 90 day probation at the new job.  And honestly I didn’t feel bad telling him that. When I had the time and was VERY flexible, after my appointments were rescheduled twice, I finally go to the office  and saw the PA instead of my GI. Obviously him and  his staff didn’t care then, but now they do when I plan to spend my mone . . i mean time elsewhere . .

Either way, my Humira injections should be arriving next week and I’m ready to get started. This week was hard, could barely keep my eyes open at work and when I got home.

Remaining hopeful, taking one day a time.