Eh . . . Remission was fun while it lasted, or maybe I’m jumping the gun! I’ll know for sure on Tuesday, have an endoscopy and colonoscopy scheduled . . . sighs
Bleeding and having bloody stools has been consistent for the past month so I finally forced myself to go see my GI, I really hope it’s just hemorrhoids but after falling asleep on my couch for the 3rd night in a row. . . . yeah it’s something. When I saw my GI he was quick to suggest I get back on Prednisone and I just wasn’t having it by my childish response “Do I have to!!” He suggested we look inside before he puts me back on meds. I’m really trying to lose weight because it’s just been out of control lately and going back on steroids will not help. I’m at my heaviest weight ever and to many that know me I still look skinny, but for me It’s not about being skinny, it’s about being healthy and if I can’t fit my clothes lol I’ve always said when I can’t fit my clothes is when I’ll start to care about my weight, well I can’t fit my clothes now and too broke to go shopping. I’ve been so sick, stressed, and busy this year my body is like nope! I think it’s time to make lifestyle changes and make big moves because my life has been the same for the past couple of years and I’m not getting any healthier.
I’ve see many others in my life get married, have kids, new relationships and friendships and my life has been stagnant. The only continuous surprise is my illness, never know when it wants to come back and ruin all my plans like usual . . . . but that’s because I allow it, my goal is to avoid doing that this time. Outside of my IBD I’m still working on me. Been at my new apartment for almost 4 months now and I love it! Still at the same job, hopefully for not too much longer. I just feel like our director just ruined a good thing, before he started we had a well oiled machine he decided to throw a wrench at it and leave it broken . . . and I’m literally sick of putting out fires. I think the stress is the reason why I started to flare up, non-profit jobs are fun on the surface but just soooo unorganized and stressful. Just joined a gym and signed up for a personal trainer . . . I’m very stubborn so I feel sorry for him lol but it’s something different and hopefully he holds me accountable. I’ve created a meetup for fellow health bloggers in my area, we’re 3 strong at the moment but the goal is to network with people with a similar passion and see what happens, and in a weird way it will be cool to be surrounded by fellow chronic illness folks *shrugs* . I’ve tried support groups and always left feeling worst, going to try something different this time around. Lastly, gonna try to get a PMP certification, I hate taking any forms of a test with a passion but If I can pass this, I think it will be a life changer. Since I’m single with no kids I’m trying to spoil myself as much as I can with all this “Me” time .
As always remaining hopeful and taking one day at time.
Happy New Year! Another year and another colonoscopy. . . For a 2nd year in a row no inflammation was found in my colon nor rectum. My colon looked so good my new GI wants to take me off my last medication of Humira. . . Holy Crap lol In a way i’m not really excited, is that weird? It took a good 2 years to adapt to this new lifestyle of being chronically ill. Going from barely taking multi-vitamins to up to 14 pills a day and being admitted to the hospital, deep depression, side effects of steroid use . . . to let’s take you off everything . .wowzer
I guess my fear is relapsing if i’m taken off all medications. I had a little flare-up this year hence the reason why I had another colonoscopy. But to be completely off is kind of scary. I have heard how the disease can go dormant for periods of time, I read one woman had a flare up after 20 years of no symptoms, this disease is something else.
I’m still awaiting the results of my biopsy but I don’t expect anything, think it was taken as a precaution. I need to be grateful and enjoy this moment. I am finally healthy again mentally and physically, starting to look for a new job, new place, recently connected with family members (ancestry DNA test is amazing!), 2017 might be a good year after all . . . we shall see!
I walked into the endoscopy center nervous and exhausted. Only having two hours of sleep, and a meal of chicken broth and jello the day before, I just wanted to get it over with. I was called to the back and the nurse that greeted me gave me a big smile which eased my nerves. After signing some paperwork and changing into a gown I laid in the bed while she was preparing the IV. Out of the blue she said to me”You’re so brave, my daughter who’s 26 is just a big baby” I slightly chuckled and smiled in response. That was very sweet of her to say, but I really just wanted her to insert the IV without it being painful lol . . Of course it was painful lol
Soon after I was taken to the room and small talked with my GI who was in a chipper mood, he looked good lol I quickly passed out. The anesthesiologist did a good job, I woke up fully alert. After drinking my fruit punch juice box I was sitting crossed leg in the bed looking at pictures of my colon while chit-chatting with the nurse waiting for my GI. A completely different vibe than last year’s colonoscopy, I was like a pro and a little too comfortable.
After my colonoscopy my GI stated that if he did not know my medical history he would not have been able to tell by how good my colon looked. He said it looks like I have a normal colon, he was a happy man lol I have never seen him smile so much lol The only things he noticed was Localized erythema with no bleeding in the rectum, cold forceps were performed and non-bleeding internal hemorrhoids. Definitely an improvement.
The exiting news according to my GI is that I have reached remission! I will have to remain on Humira for now, but will start weaning off the other drugs. First one is the infamous Prednisone, which by mid January I will be completely off the drug! I’m more excited getting off Prednisone than remission to be honest lol.
I guess Humira was my saving grace . . . It’s nice to have happy news going into the New Year. I am very grateful.