umm it’s too cold . .

At my current job the air has always been an issue. Since last July I have had to wear a fleece in the office in order to stay warm. But the past few months have been ridiculous. For some odd reason, when it was 40 degrees outside a couple of weeks ago, the AC was on in our office. Why is the AC on in March ?!?!? I remember heading outside and realizing the our office was slightly warmer. As a result everyone in my office has been sick at least once. Even my former boss who thought she had just “allergies” discovered it was actually pneumonia, freaking pneumonia?!?!? which is like death to me. .. of course I freaked out because I wasn’t feeling well. Had an appointment with my GI shortly after I found out and discovered I was walking around with a fever?!?!

A week after all this drama it was still freezing cold in the office. I was wearing  a blouse , sweater, and a scarf and I was still cold, and experiencing my 2nd cold in 6 weeks. At my desk all I could hear was people sneezing and coughing, then I looked at the dirty carpet thinking when was the last time they vacuumed? Ummm this office is dirty . . . hence the reason why we’re all getting sick, ummmm. . . . I can’t get sick, i have an autoimmune disease, I’m taking drugs to lower my immune system. I stood up, tighten the scarf around my neck and walked to the front desk to complain how cold it was and asked for the office supplies catalog, I’m going to order a space heater. .

Surprisingly there were space heaters in the catalog and I thought, “no harm in asking”, when I walked into my boss’ office. Why should I buy one? I can’t use it in my  apartment, it is stated in my lease space heaters are not allowed and the office was not a safe environment for my health. Even if my boss rejected the order, they better fix the air or I would certainly get a doctor’s note.

Talked to my boss about it, he said “sure, I’m freezing too!”. I was like wow thanks buddy! So I ordered the space heater with my supervisor’s approval but it took over a week to get to me?  Come to find out through the grapevine, it was rejected and my boss nor myself was notified. Umm wtf?!? Like I totally get if it was rejected because of a safety hazard but no notification and then it magically appears?!?

By the time my space heater arrived the air was miraculously fixed, haven’t worn a extra sweater in days . . . hmmm . . You’re welcome 😉

 

 

Positive vibes . . . :)

The past 3 weeks have been a new low for me, but I am happy to say for the past 24 hours it has been a good day! And this beautiful weather is totally matching my mood.  I’ve been out running errands and even attended my first crohn’s/colitis support group through the CCFA.  It was a very positive experience, and to meet other young people of difference races with this disease, it was very comforting. It was also great to talk about symptoms in graphic detail without grossing people out, that was pretty cool. I plan to keep attending and the facilitator stated how today was a smaller turn out, so it’s exciting that  it might be a larger group next time.

For my fellow IBDers or parents that have children with IBD, I highly advise that you look into CCFA local chapters and their support groups. Writing this blog has been a wonderful experience and my online community has been very supportive, but I will admit, meeting people in your area that have the same disease is even better. Check out the link below.

http://www.ccfa.org/living-with-crohns-colitis/find-a-support-group/

In regards to my blog, its being featured in a new online blogger magazine titled “Twenty Somethings” which is freaking awesome!  And if you’re a blogger in your 20’s, they are looking for new bloggers for the summer edition, so check it out!   https://issuu.com/twentysomethings/docs/twenty_somethings_-_edition_1/1?e=0

Lastly, I have the song “Whistle while you work it” stuck in my head. I heard it on Pandora recently and it put a smile on my face this past week. I think it’s an uplifting song and I love the beat. Just wanted to share 🙂

℗ 2015 Atlantic Recording Corporation for the United States and WEA International Inc

As always, I remain hopeful 🙂

My body’s schedule . . .

I believe I jinxed myself in my last post. The pain returned the next day, and I have been on Tylenol extra strength ever since. I was able to make an appointment with my GI this Wednesday so I just need to survive until then. Over the long holiday weekend instead of enjoying the beautiful weather, I ran a few errands and parked myself in my bed or the couch, this is the 2nd weekend in a row I’ve done this, it’s frustrating.

In the past 3 months I have noticed a pattern,  I have one good weekend every month.  The one good weekend is when I have the energy to be social, but I’ll admit, my “shell” has been very comfortable in the past few months. Going out to a bar/club or just being around a lot of people has made me more anxious than relaxed lately. When I walk into a public place the first thing I’m looking for is the restroom, and waiting to see how long it takes to feel the stomach pains.

After that “good” weekend,  I have two weekends of exhaustion. Basically two days in bed, and barely seeing the outside world. When it was cold it was easy to stay in bed, but since it’s getting warm maybe it will motivate me to at least sit outside. The main reason why I’m so exhausted during these weekends is because of what my body went through during the week. For example, the past 2 weeks I have had abdominal pain, diarrhea, and a loss of appetite everyday. Those symptoms are not energy inducing or healthy, and you become exhausted. By going to work everyday, I was forcing my body to move when all it wanted to do was rest. But who can afford to take off for weeks . . .

Lastly the weekend of hell, aka Aunt Flo visiting. To be a woman and have an IBD, you are a VERY strong woman, menstruating and having an IBD for me has been a flare-up to the max! I’m very irritable, not just from the symptoms but I can’t even eat chocolate because it irritates my stomach . .  it sucks!

So . . . if I cancel last-minute or decline an invite, it’s because I’m training myself to listen to my body. I’m still adjusting to my “new normal”.

My primary physician referred me to a nutritionist whose expertise is gastrointestinal disorders. I have never been so excited to see a doctor, but I believe it will be bittersweet. I’m pretty sure I’ll walk-in smiling and leave frowning . . . we shall see 🙂

Remaining hopeful . . .

I am currently experiencing my first BAD flareup. After 3 days of hell, I am now starting to feel better. To have intense cramps all day and going to the bathroom at least 10 times a day, I feel so relieved that the pain has stopped.  I also feel safe to eat again, earlier today I was scared to eat anything just to avoid any more pain. I prefer hunger pains any day over severe abdominal pain.

But even though the past few days have been horrible, it could be worst. I found the below video of a young woman’s struggle with Crohn’s, please watch.

Remaining hopeful 🙂

So sick of . . .

I am so sick of seeing white walls . . . the walls of my doctors’ offices, walls of my pharmacy, walls of my job. I’m so sick of paying for co-pays, prescription re-fills, and medical bills.  I’m so sick of medical assistants with bad attitudes, I’m just done lately.

I went to see my primary physician the other day and she also wants me to get blood work done.  My doctors are like vampires . . . this disease is like a vampire, sucking the life out of me.  I’ll admit, I have allowed this condition to “stop” my life. I try to travel somewhere at least once a year, but a vacation is not even on my radar right now. Because when I think of a vacation the following things come to mind in this order:

  • I can’t afford it or it’s not smart right now to make a big purchase because who knows what my condition will be like 3 months from now.
  • Will I have enough medication to take on the trip? What if I forget or lose my meds?
  • What do I eat?
  • Will I have access to a bathroom if I’m having a flare-up
  • Fears of a long flight/bus ride. Probably won’t eat anything prior to be safe.
  • Oh and have fun!

In the past, having fun was never last.

The one thing that stood out for me during my doctor appointment was when the medical assistant asked if I was depressed? After a long pause, I responded. . . .

Maybe I am?