It’s been a while . . .

It’s been a while since I’ve written . . . its been a while since i’ve done anything for me. My life for the past few weeks has been devoted to sleeping, paying bills, and work. . . such a drag. When I do go out I’m completely exhausted.

I wish I could say, “At least I’m healthy!” . . . . . .but my immune system is no good! In the past 2 months I have had a case of food poisoning, UTI, and recently my 3rd cold of this year. I have never been so sick, so often. So what’s the deal?

I think it’s the Humira. The bleeding has not been present for about 2 months now, but I’m steady getting sick and my hair is thinning out.  I’ve lost all my prednisone weight but due to stress I sometimes forget to eat and forget to take my meds. Yes I will admit it! I have been slacking in taking my meds, instead of 4 apriso pills a day i’ve been taking 1-3 pills, because I tend to fall asleep or genuinely forget. It’s odd . . .

Hips and knees starting to hurt, but my skin is beautiful, my body looks great, and I feel like im 50 years old. . . . so crazy!

As always I remain hopeful, taking one day at a time!

 

Truth! . . .

tw pic 2015

This is something I struggled with this past week. In order to move forward in my life, I had to take a risk and this disease almost made me miss an amazing opportunity. Who knows. I might regret this decision in the long run, but I cannot try, live, and grow. You only live once!

When it rains . . . it pours! . . . sighs . .

I received a call from my primary physician’s office today wanting to discuss my lab results. I immediately freaked out since I was just there last Thursday.  They called to tell me that my blood test results show that I am pre-diabetic! Freaking awesome!!! When it rains  . . . it POURS for me lately!. . . .  sighs . .  As I was sitting at my desk at work I slowly started to choke up and cried for a few seconds. Then I remembered I’m still at my desk, so I decided to walk outside to avoid my coworkers seeing me cry. I sat on a bench for a minute and called my doctor’s office to make sure they communicated my blood test results to my GI’s office. My belief is maybe my GI’s office will take my concerns seriously if they heard the blood test results from my doctor and that she agrees that I need to get off the prednisone asap! She believes the long-term steroid use has caused my blood sugars to be high. I’ve been doing this FODMAP diet for 6 weeks now, I don’t see how my diet could be the cause. I expect to hear from my GI’s office by COB tomorrow, if not I will call again. If they are annoyed by me now . . Oh I’m just getting started!! and looking into finding a new GI.

Taking one day at a time . . .

FODMAP Diet Week 4 – Travel . . . .

Week 4 of my FODMAP diet was out of my control because I was on vacation. Beforehand, I knew it would be a challenge and it was, but not bad.

Travel day was difficult, having a flight departing at 5:15 am is not a pleasant experience, but at least we had a layover where I could eat breakfast in order to take my meds. I thought buying a plain bagel, banana, and a bottle of water from Yogiberry would be safe. But right after eating, I went to the bathroom several times and had stomach pains that I have not had in months. I requested a plain bagel with butter and they provided me with the butter packets, so I assumed it was safe but maybe my symptoms were more UC related than my diet. Either way, it was the best option in the airport.

Once we arrived at the hotel it was lunch time and I was starving. Thankfully my vacation was in San Diego and seafood is everywhere. For lunch I ordered Cioppiono Seafood Stew, absolutely delicious! Cioppiono is a tomato broth stew with shrimp, white fish, mussels, squid, and any other type of seafood. I did not have visible onions in my stew but I’m pretty sure onion and garlic seasoning was used, and honestly I didn’t care in the moment lol  The only negative was that it was served with garlic toast which smelled wonderful!! but I did not touch, just pushed it to the side. I had no tummywoes from this meal.

ciopinno

For dinner I had chicken fajitas with corn tortillas, refried beans, and rice, I avoided the beans.

Our hotel provided a complimentary hot breakfast every morning and since there were not many options, I had the same meal everyday. Whatever cooked meat (ham was my preference), scrambled eggs that had no seasoning, and a bowl of regular instant oatmeal with a glass of water. I purposely ate this meal at least two hours before we were out for the day just in case I would have any stomach issues. Surprisingly I did not, and it was a good meal to start a very active day.

In regards to snacks I bought plain almonds, blue corn tortilla chips, organic granola chocolate chip bars, and drink lots of water.

One of my biggest fears was visiting tourist attractions such as Sea World and the San Diego Zoo and figuring out what can I eat that will not bother my stomach when I will only have access to public restrooms. Sea World was significantly better  in providing healthy and allergy free  food options.  At Sea World we ate at the Shipwreck Reef Cafe, there were many signs stating how items were gluten, nut, and soy free. So I ate happily by ordering lemon thyme rotisserie chicken with baked potato chips and a cup of fresh strawberries for desert. I had no tummy issues all day, it was great!

In regards to my meals for the remainder of my vacation, if fish was an option I ordered it.  Also, it was great to see almost every restaurant had a gluten-free menu, like the gluten-free pork ribs I ordered below 😉 lol

ribs

Overall, my vacation wasn’t bad in the eating department.  I felt like I always had options and I allowed myself to cheat if needed. The one thing I learned is that eating in an airport is difficult because options are so limited, I highly recommend eating a meal before going to the airport.

Kudos to Brian Greenberg – Intense Intestines Foundation . . . . :)

I found the below video on my Facebook news-feed and it’s story of Brian Greenberg, President of Intense Intestines Foundation, and his story about his life with Crohn’s disease. After watching his video, I decided to check out his foundation, it’s look like a way to connect IBDers through education, support, and social events. Check it out when you get a chance 🙂

The Intense Intestines Foundation Mission Statement:The Intense Intestines Foundation’s mission is to help patients in their journey with Crohn’s disease, ulcerative colitis and ostomies by connecting, supporting and educating those with IBD and their loves ones by promoting a healthy lifestyle. (http://www.intenseintestines.org/)

Kudos to Brian Greenberg for spreading IBD Awareness!

FODMAP Diet Week 3 – My recipes . . .

I added a couple of items to my breakfast routine. Eating a banana, steel-cut oats, and a boiled egg everyday gets boring. I found the below items that are all gluten-free, wheat, dairy, and soy free. Also,”So Coconut milk” is my jam, haven’t had any issues with it.

cereal blueberry oatscoconut milk

 Apologies for the quality of the pictures, my iPhone sucks!

This past week was the war of the meatballs for me. I made homemade ground turkey and beef meatballs. Turkey meatballs were way better. I seasoned both with the following fresh ingredients:

  • chives
  • sage
  • oregano
  • Basil
  • parsley
  • salt/pepper
  • paprika
  • garlic infused olive oil

In the turkey meatballs you can taste the flavor, not so much in the beef meatballs. I made the turkey meatballs for spaghetti using the same sauce recipe from last week. It came out pretty good and lasted for 4 days. Then I made the beef meatballs with sweet peppers and rice. I tried to make a gravy out of the drippings with the gluten-free flour, I was NOT successful and cheated.  I added ketchup to the drippings and anything else I had, and as a result I made my first ever BBQ sauce! I did not complain, it was my lunch for the week at work. Since it was such a heavy lunch,  for dinner I made turkey sandwichs with gluten-free bread, lettuce, tomato, bacon, and Dijon mustard. I bought the turkey lunch-meat from Trader Joe’s, no garlic or onion, all natural herbs.

turkey breast

By Friday I was all meat out! When I return from vacay, I’m going to do only fish, shellfish, and try tofu for a week. Sick of meat and potatoes. Friday night I made amazing tuna cakes with items I had sitting around. My recipe below:

Ingredients:

  • 2 cans of tuna in water
  • Half a lemon (for the juice and zest)
  • Dried basil, parsley, oregano
  • 1/2 cup of cooked cold quinoa
  • 1 tsp of Dijon mustard
  • dash of hot sauce
  • 1 egg
  • 1 tbsp of water (used tuna water)
  • Salt/pepper

Mixed all ingredients in a bowl (except the egg) and tasted. I like a tangy taste so I added a little more mustard. Once it was seasoned to my liking, I added the egg and formed 4 tuna cakes and placed in the fridge for 30 minutes. After 30 minutes, I cooked the cakes in a non-stick pan using 2 tbsp of olive oil and a little butter.   Cooked each cake 4/minutes per side. They were delicious and moist!  Using quinoa instead of breadcrumbs is my new thing.

tuna cakes

Yesterday I went out for dinner for the first time in a while, and yes I was worried I would not be able to eat anything. But! I’ve noticed lately many popular chain restaurants now serve healthier, gluten-free, options and provide nutritional information on their website. I had dinner at BJ’s restaurant http://www.bjsrestaurants.com/menu and had their chicken and spinach quinoa. Of course it had onions, mushrooms, and I’m pretty sure garlic. I requested no onions and the waiter said “sure, no problem”. . . I sighed with relief lol  I could have asked without mushrooms too,  but I decided to just push them to the side. I definitely tasted the garlic but hey, I removed one of the two evils.  😉 Overall it was a tasty meal and no tummywoes! 🙂

This next week should be interesting since I will be eating out everyday, but might may a trip to a local Whole Foods near the hotel. Should be an adventure!