Follow-up with the GI . . . . .

This past Friday I had a follow-up appointment with my GI’s office, I met with a physician assistant (PA) since my GI was unavailable. The PA was an older woman, and I could tell she was nervous, and inside I slowly rolled my eyes and thought, maybe I should have waited to meet with my GI. Nevertheless, I followed doctor’s orders and visited the office within a week after increasing my Apriso intake as directed. I told the PA that I started feeling better with this change in prescription, but some symptoms remained which raised concerns. After the PA wrote down my symptoms she stepped out to get a opinion from another GI and I heard a familiar voice. When she returned she told me how she bumped into my GI in the hallway all scrubbed up for surgery, and he told her to give me an additional prescription. So until my 3 month colonoscopy follow-up appointment next month, I will be taking  Budesonide 3 times a day. With this prescription, it states to take it in the morning, but I am already taking 5 pills before noon, so it’s my early afternoon stash. My grand total of daily pills is now, drum roll . . . . . 11 pills every freaking day!!

pillbox

I have now accepted that I have an illness. My pillbox is full and if my GI was to say we have to add another prescription, I have to say NO for my sanity and bank account.   To see the amount of pills I take daily is insane! I have purposely split my prescriptions between two pharmacies because I am refilling almost every two weeks and I do not want to be “that girl” or for them to know me on a first name basis. I know it’s silly, but I started to noticed a look of pity from one pharmacist whenever I picked up a prescription. . . sighs

The funny thing is that I have been getting so many compliments lately. “Oh your skin looks so beautiful”, “you’re losing weight!”, and “You seem more chipper”. In regards to my skin looking beautiful I’m not surprised, because all day I’m drinking water to take my pills and it’s the only drink that will not irritate my stomach. Losing weight has not been a choice. There are days when I have an appetite and I eat everything in sight, and other days I am forcing myself to eat. I will admit that I do have more energy and have been sleeping better which is one positive result from this medical treatment.

In regards to my diet, the PA stated I should be more concern with my GERD than Colitis. It is a good point, but through my research I have noticed that an acid reflux diet and colitis diet do coincide. She recommended that I keep a food journal. Which I will do, and I am looking for a food journal app. Any suggestions?

Otherwise, I remain hopeful and taking one day at a time 😊

What do I EAT?!?!? . . .

benice to gutsAn IBD is basically your body rejecting the food you consume, and with colitis it really doesn’t matter what you eat, you can still suffer.  The fascinating thing about UC  is that most healthy foods are not colitis friendly. Who knew that eating a salad could be bad for you. I used to eat a salad multiple times a week for lunch and loaded it with raw peppers, mushrooms, broccoli, cauliflower, etc.  I have now discovered that eating raw vegetables is not good for UC and is listed as foods to avoid. Also, my favorite cereal used to be strawberry frosted mini-wheats, not anymore,  because high-fiber foods are not colitis friendly.  Took my box of mini-wheats to work and put it up for grabs  😦

I found a list of foods to avoid when you have UC from healthline.com and I’m shocked!  Eating healthy, is not “healthy” for everyone. Check out the list below:

  • Whole grain, bread, cereals, and pastas
  • Brown rice and other whole grains
  • Nuts and seeds
  • Dried peas, beans, and lentils
  •  Raw seeded fruits, nothing from the berry family
  • Avoid all raw or under-cooked vegetables, including corn and mushrooms
  • Popcorn and coconut

Crazy right?!?!?

So what can I eat? Below are a few things that are considered colitis friendly:

  • White bread without seeds
  • White pasta, noodles, rice
  • Crackers and cereal made with refined white flour
  • Canned or cooked fruits
  • Tender,  soft lean meats, fish

Check out the full article at healthline.com at http://www.healthline.com/health-slideshow/ulcerative-colitis-foods-avoid

I have an appointment with my GI later this week, and I plan  to ask for resources or just a guide on creating a meal plan for my UC and acid reflux.  I have gone somewhat cold turkey since I’ve been diagnosed.  I  have tried to avoid soda and citrus juices, working on it. But I have refrained from consuming alcoholic drinks and raw vegetables.  sighs . . it’s a struggle.