As some symptoms went away, I’ve gained a new one . . sighs . . Ladies have you ever been severely bloated where it looks like you’re pregnant? I first noticed it at work yesterday. I knew I wasn’t feeling well because my stomach was making a lot of noise and I was belching a lot. As I was in the staff lounge, I happened to look down and see my stomach before my feet. I freaked out! and even a friend at the job looked at me and asked “What’s going on?” I responded “I don’t know” quickly got my cup of tea and wrapped my cardigan tighter around my stomach before anyone else noticed. A few minutes later, I felt the cramps and took a powerful painkiller that made me feel so good for the remainder of the work day lol The bloating eventually went away, but later last night it happened again.
I know it was probably the lunch I had, a chicken bruschetta sandwich on multi-grain bread with a side of melon fruit was probably a bad idea. I plan not to order such a meal again, but I am worried since I was discharged just a few days ago. I’m hesitant to tell my GI, I don’t want to go back to the hospital 😦 Anyway, I made an appointment with a nutritionist that specializes with GI disorders/diseases next week. After talking to her on the phone, I am very hopeful that she can help me create some type of meal plan or diet because I’m sick of throwing out food. For the past month, no matter what I ate irritated my stomach. It would be nice to enjoy eating again.
Remaining hopeful and taking one day at a time :).
Sighs . . . to all my fellow IBDers this video might make you more anxious than laugh lol But I think its a funny BuzzFeed video that everyone can relate to. Check it out 🙂
I really believe there is little awareness in mainstream media about Inflammatory Bowel Disease (IBD), so when I see a clip about IBD on TV, I get excited!
Kudos to the Dr. Phil show for spreading awareness about IBD!
Please watch below and share with your family and friends. It’s a great video about what is IBD.
Every since I was a kid I have always had “low energy”. According to my mother I was the perfect child 🙂 . . . . Not because I was an only child ;), but I was never hyper. I was very shy and reserved, and also anemic as a child. I remember in elementary school going to the nurse office every morning to take my iron pills.
As a child I do not recall feeling tired, but I do remember my lips bleeding. I’m pretty sure that’s the reason why I’m obsessed with lip balm/gloss to this day. I have this fear of my lips being chapped that they will split and bleed. Prior to being diagnosed with colitis, I noticed my lips started to bleed again and I was tired. . . . a lot.
I had a feeling something was wrong just by looking at myself in pictures from last year. I had a very active lifestyle in 2014 but when you look at my eyes in photos, they were always heavy and sometimes red. I immediately thought, maybe I’m just getting older and starting to look differently, gotta get used to the bags under my eyes. . . .But my second thought was, maybe i’m sick? And even though I’m very active and eating healthier, I am always tired . . . . . .
This week has been a true test for my condition, not only do I have colitis, but its been a very stressful week at work and Aunt Flo came to visit. “Pmsing” is the worst, and with Colitis it feels like a flare-up x 100 for me. At a staff dinner last night, I remember sitting at the table in pain and in a daze, completely absent and exhausted. And when I got home today, my knees buckled right before I collapsed on the bed.
My goal this weekend is to sleep as much as I can, but even when I do, I don’t feel rejuvenated. I guess it’s something I have to get used to.
I was very curios to know if having an IBD affects your menstrual cycle. I found the below fact- sheet from CCFA.org titled Women and IBD, very interesting. http://www.ccfa.org/assets/pdfs/womenfactsheet.pdf
Through my research I was surprised to discover that many “IBDers” are young, like very young, under the age of 18. According to CCFA.org, approximately 1.4 million Americans have either Crohn’s disease or ulcerative colitis. That number is almost evenly split between the two conditions, and one in ten IBD patients are under the age of 18.
I’ll admit having an Inflammatory Bowel Disease can be somewhat embarrassing. Even what IBD stands for might make people chuckle and I’m okay with that, but I am 28. Can you imagine being a teenager and always having gas, the fear of having an accident, or just having people laugh in your face when you explain what IBD stands for? I couldn’t imagine . . . but luckily they are not alone. Camp Oasis that was established 10 years ago by the CCFA, is a summer camp for children that suffer from an IBD. This co-ed residential summer camp program enriches the lives of children with Crohn’s disease and ulcerative colitis by providing them with a safe and supportive camp community. For more information please visit http://www.ccfa.org/get-involved/camp-oasis/ and check out the video below.
Another great outlet for young IBDers is the website, “Me and IBD” http://www.meandibd.org/ by Crohn’s and Colitis UK. it’s an online community that provides support for young adults on how to deal with image, friendships, relationships, and many other issues they might face living with an IBD. Check out her story below.
After reading stories of young people with an IBD and how they cope daily with this disease, I can only be positive. Remaining hopeful 🙂