Give me the strength! . . smh
Currently taking 3 out of 5, I guess that’s not too bad . . .
At spin studios throughout the US, people will be spinning for a cure on December 8th. Check out their promotional video below and click this link for more information. Please share 🙂 The more awareness and money that is raised, the closer we are to finding a cure!!
I’m surprised I just found out about this event even when I’m a CCFA member . . smh . . there really needs to be more publicity for Crohn’s an Colitis in the US. .
As you can tell I’ve been very moody this week 😉 Life has been busy and to some blogging on a Friday night might seem lame, but it feels wonderful to just lay in bed, sooo tired.
On Sunday I had my first Humira injections and for those of you who are familiar, the first dosage is 4 injections, I did two in each thigh. Luckily, I had a nurse to help me because there was no way I would’ve been successful solo. It was an unpleasant experience . . . I wasn’t expecting the stinging sensation. I have a high tolerance for pain (like many IBDers) but when the nurse told me to count to 10, I couldn’t . . my mouth was agape and I said loudly, “I was not expecting that!” The nurse chuckled, I was literally speechless and in pain, but I was able to give myself the remaining three injections under the nurse’s supervision.
To basically “stab” yourself in the legs and feel the meds slowly enter your system was not pleasant at all. After the nurse left, I got a little emotional thinking how am I going to do this? But I’ve been told you get used to the feeling, get used to the pain, which is something I have many years of experience doing. What freaked me out the most was seeing a little blood when I removed the injection from my leg . . . but it is a needle . .
Is it normal to not feel one of your legs right after? lol That happened to me. And the one thing I noticed this week at work is that I’ve gone to pee like 5-10 times a day lately. . . . that’s different, i’ll mention it to my GI . . .
Yeah this song pretty much sums up how I feel at any social setting lately . . .
Holy Crap! You know you’re sick when you have your personal hazardous materials disposal container.
I am learning to accept that IBD is no joke . . I might look “great” (as I’ve been told by many) but inside my body is literally attacking itself. Lately I’ve been eating everything in sight with no bloating or abdominal pain which is awesome!, BUT the bleeding is persistent and getting worst, and the fatigue has been no joke. For the past 4 weeks, I have fallen asleep in my work clothes at least twice a week. Now, as soon as I get home I immediately put on my pjs. I sound like an old person!! Not fair!!
Insurance has approved my Humira prescription for the next two years and my starter kit arrived the other night. To sound even more old, I’ve scheduled an RN home visit for my first injection. . I’m nervous but desperate for anything to make me feel better.
When you’re sick you would expect out of all people your doctor would be the most compassionate, but it’s not always the case. As a patient you spend so much of your time and money to seek professional help to get healthy, but then you start to realize your illness is just a paycheck for some. How disturbing and disrespectful! So . . . since they view your illness and regular appointments as transactions, well I need to view them as a business too. I am taking time out of my day and money out of my pockets to see a doctor for a service. I expect quality service as soon as I walk in. If I continuously receive bad service I will take my money and time elsewhere. . I know this is easier said than done especially when seeing a GI since there are so few GI doctors, but as patients we have to demand respect, and our questions/concerns should be taken seriously. We’re NOT craving for attention, we’re sick!!!
I found the below clip from the Golden Girls on my fbook newsfeed, it spoke volumes for me and has given me new-found confidence whenever I visit a doctor. Please watch and share!
I found this awesome article on BuzzFeed titled, “What you say to someone with chronic pain, and what they hear”. . It displays images of typical conversations that people with a chronic illness have with “normal” people everyday. I loved the article because I could relate, but then I thought, “why isn’t it okay for me to take people at their word? Why must I think more into it?” I have my many reasons and have been suffering from anxiety and insecurities long before I was diagnosed. . . . But being diagnosed with Crohn’s (Yes, I am accepting this crohn’s diagnosis for now) which is a chronic illness and how my life has dramatically changed in the past 9 months, these images spoke volumes. I’m always questioning people’s’ intentions. It’s the reason why lately I no longer openly discuss my illness outside of my immediate family, unless someone ask. I can just imagine someone rolling their eyes when I talk about my illness, even though I have never seen it happen, I can just imagine it or expect it to happen. . . I know . . .a sad, exhausting way to live that’s why at times I hate being alone with my thoughts.
BuzzFeed posted another interesting video “what anxious people actually hear”, of course it has a comedic twist, but I’m sure many can relate 🙂
I’ve been writing this blog since January and it’s been such a great experience! Not only has it been therapeutic, but also enjoyable. I have a new love for writing!
The one cool thing about this new job is that I maintain all social media and the website for our association, all new skills for me. Our website is run via Wordpress and I already discovered a new social media tool called Tweetdeck. By next year with these new skills, my blog is going to be fancy!!
If you haven’t already, please checkout my facebook and twitter account for TummyWoes
IBD Warrior @TummyWoes
Thank you! 🙂