Like spinning? . . . spin for a cure!!

At spin studios throughout the US, people will be spinning for a cure on December 8th. Check out their promotional video below and click this link for more information. Please share ūüôā The more awareness and money that is raised, the closer we are to finding a cure!!

I’m surprised I just found out about this event even when I’m a CCFA member . . ¬†smh . . there really needs to be more publicity for Crohn’s an Colitis in the US. .

CCFA Take Steps Baltimore . . . :)

I think I have finally calmed down after my prednisone rage, and hope to finally get some sleep tonight. I’ve been wired and walking around mad for the past 3 days, scary stuff lol ¬†Anyway on to something positive.

This weekend I’m visiting my mother who lives in the suburbs of Baltimore to discuss our upcoming trip to¬†California. Yes, ¬†we both decided we needed a little break from our lives and will be heading west for a much needed short vacay. ¬†A vacation . . . . something I thought I would not be able to do this year, I’m glad I’m taking a break. While discussing our trip details, she mentioned how her church will be participating in the CCFA¬†Take Steps walk in Baltimore on June 6, and how she registered and planned to walk. I asked why didn’t you tell me about it? She stated “You’ve been sick lately and I wasn’t sure you would have the energy to walk, I decided to walk with my church in your honor”. ¬† Awww . ¬†. . ¬†*tear, tear* ¬†I said thank you and that’s very sweet of you, but I would love to¬†join you and the church, so I am now registered! My mother told me how the Bishop’s son was diagnosed with Crohn’s disease many years ago and he has been an advocate for Crohn’s & Colitis research since. I no longer live in the Baltimore area, but I might consider joining this church. I have never been a religious person, but lately I need all the positive vibes I can get.

My mother is a strong woman, I can count the times I have seen her cry on one hand. Me being her only child, I have¬†wondered how my illness has affected her because she doesn’t show it. Maybe she’s being strong for the both of us, I guess that’s what Mothers do. ¬†ūüôā

Check out the event! http://online.ccfa.org/site/PageServer?pagename=TS_homepage

My body’s schedule . . .

I believe I jinxed myself in my last post. The pain returned the next day, and I have been on Tylenol extra strength ever since. I was able to make an appointment with my GI this Wednesday so I just need to survive¬†until then. Over the long holiday weekend instead of enjoying the beautiful weather, I ran a few errands and parked myself in my bed or the couch, this is the 2nd weekend in a row I’ve done this, it’s frustrating.

In the past 3 months I have noticed a pattern, ¬†I have one good weekend every month. ¬†The one good weekend is when I have the energy to be social, but I’ll admit, my “shell” has been very comfortable in the past few months. Going out to a bar/club or just being around a lot of people has made me more anxious than relaxed lately. When I walk into a public place the first thing I’m looking for is the restroom, and waiting to see how long it takes¬†to feel the stomach pains.

After that “good” weekend, ¬†I have two weekends of exhaustion. Basically two days in bed, and barely seeing the outside world. When it was cold it was easy to stay in bed, but since it’s getting warm maybe it will¬†motivate me to at least¬†sit outside. The main reason why I’m so exhausted during these weekends is because of what my body went through during the week. For example, the past 2 weeks I have had abdominal pain, diarrhea, and a loss of appetite¬†everyday. Those symptoms are not energy inducing or healthy, and you become exhausted. By going to work everyday, I was¬†forcing my¬†body to move when all it wanted to do was¬†rest. But who can afford to take off for weeks . . .

Lastly the weekend of hell, aka Aunt Flo visiting. To be a woman and have an IBD, you are a VERY strong woman, menstruating and having an IBD for me has been a flare-up to the max! I’m very¬†irritable, not just from the symptoms but I can’t even eat chocolate because it irritates my stomach . . ¬†it sucks!

So . . . if I cancel last-minute or decline an invite, it’s because I’m training myself to listen to my body.¬†I’m still adjusting to my “new normal”.

My primary physician referred me to a nutritionist whose expertise¬†is gastrointestinal disorders. I have never been so excited to see a doctor, but I believe it will be bittersweet. I’m pretty sure I’ll walk-in smiling and leave frowning . . . we shall see ūüôā

Remaining hopeful . . .

I am currently experiencing my first BAD flareup. After 3 days of hell, I am now starting to feel better. To have intense cramps all day and going to the bathroom at least 10 times a day, I feel so relieved that the pain has stopped.  I also feel safe to eat again, earlier today I was scared to eat anything just to avoid any more pain. I prefer hunger pains any day over severe abdominal pain.

But even though the past few days have been horrible, it could be worst. I found the below video of a young woman’s struggle with Crohn’s, please watch.

Remaining hopeful ūüôā

So sick of . . .

I am so sick of seeing white walls . . . the walls of my doctors’ offices, walls of my pharmacy, walls of my job. I’m so sick of paying for co-pays, prescription re-fills, and medical bills. ¬†I’m so sick of medical assistants with bad attitudes, I’m just done lately.

I went to see my primary physician the other day and she also wants me to get blood work done. ¬†My doctors are like vampires . . . this disease is like a vampire, sucking the life out of me. ¬†I’ll admit, I¬†have allowed this condition to “stop” my life. I try to travel somewhere at least once a year, but a vacation is not even on my radar right now. Because when I think of a vacation the following things come to mind in this order:

  • I can’t afford it or it’s not¬†smart right now to make a big purchase because who knows what my condition will be like 3 months from¬†now.
  • Will I have enough medication to take on¬†the trip? What if I forget or lose my meds?
  • What do I eat?
  • Will I have access to a¬†bathroom if I’m having a flare-up
  • Fears of a long flight/bus ride. Probably won’t eat anything prior to be safe.
  • Oh and have fun!

In the past, having fun was never last.

The one thing that stood out for me during my doctor appointment was when the medical assistant asked if I was depressed? After a long pause, I responded. . . .

Maybe I am?

You gotta laugh – Awkward Bathroom moments :) . . .

Sighs . . . to all my fellow IBDers this video might make you more anxious than laugh lol But I think its a¬†funny BuzzFeed video that everyone can relate to. Check it out ūüôā

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