As some symptoms went away, I’ve gained a new one . . sighs . . Ladies have you ever been severely bloated where it looks like you’re pregnant? I first noticed it at work yesterday. I knew I wasn’t feeling well because my stomach was making a lot of noise and I was belching a lot. As I was in the staff lounge, I happened to look down and see my stomach before my feet. I freaked out! and even a friend at the job looked at me and asked “What’s going on?” I responded “I don’t know” quickly got my cup of tea and wrapped my cardigan tighter around my stomach before anyone else noticed. A few minutes later, I felt the cramps and took a powerful painkiller that made me feel so good for the remainder of the work day lol The bloating eventually went away, but later last night it happened again.
I know it was probably the lunch I had, a chicken bruschetta sandwich on multi-grain bread with a side of melon fruit was probably a bad idea. I plan not to order such a meal again, but I am worried since I was discharged just a few days ago. I’m hesitant to tell my GI, I don’t want to go back to the hospital 😦 Anyway, I made an appointment with a nutritionist that specializes with GI disorders/diseases next week. After talking to her on the phone, I am very hopeful that she can help me create some type of meal plan or diet because I’m sick of throwing out food. For the past month, no matter what I ate irritated my stomach. It would be nice to enjoy eating again.
Remaining hopeful and taking one day at a time :).
A friend forwarded me a link to amazon.com about Haribo Gummi candy reviews. At first, I did not know Amazon sold gummy bears and that you could buy a 10 lb pound bag!! After getting over that shock I noticed something very odd, this candy had over 1,300 reviews. Why does gummy bears have that many reviews on Amazon?!? Then I started to read the reviews and they all had something in common, people were telling their experience of digestive torture that this candy had ensued upon them!!. There are reviews titled as “I have seen the face of God! . . .Wet-ing my pants, and alternate colonscopy prep”. These reviews are hilarious! And I was very surprised because I love gummy bears, but never noticed the candy bothering my stomach . . hmmm . . .
Anyway, I encourage all my fellow IBDers to read these reviews if you are in need of a good laugh. Not only are the reviews funny, but also relatable 😦 Below is an excerpt from my favorite review titled, “Do not bring to sporting events”
After the excitement of the 1st quarter has ended I take my son out to get him a bottled water and myself a beer. We return to our seats to enjoy our candy and drinks.
…………..fast forward until 1 minute before half time………..
I have begun to sweat a sweat that is only meant for a man on mile 19 of a marathon. I have kicked out my legs out so straight that I am violently pushing the gentleman wearing a suit seated in front of me forward. He is not happy, I do not care. My hands are on the side of my seat not unlike that of a gymnast on a pommel horse, lifting me off my chair. My son is oblivious to what is happening next to him, after all, there is a mascot running around somewhere and he is eating candy. I realize that at some point in the very near to immediate future I am going to have to allow this lava from Satan to forcefully expel itself from my innards. I also realize that I have to walk up 24 stairs just to get to level ground in hopes to make it to the bathroom . . . . http://www.amazon.com/review/R1JISL51M4FG0D
I’m pretty sure on this day he was suffering from this too . . . lol
I know at times i have the sense of humor of a 12 year old boy lol, but my 3 month colonscopy follow-up appointment is this week, and i’m very anxious . . . . . . sometimes you gotta laugh 🙂
For those that have an IBD the amount of pills you take daily can be overwhelming for most. When you tell people, “Yeah I take 10+ pills a day” . . and hear a gasp or OMG! You feel just as sad, but it eventually becomes another daily routine. It’s not fun or easy, but it needs to be done in order to force your symptoms into remission.
I found the below video on YouTube of a brave young woman who has been living with colitis for over a decade. She gives viewers insight into her daily life living with UC. All credit goes to her.
Maybe one day I’ll create my own medicine haul.
It’s been a struggle lately in regards to fast-food, especially when your job is a block away from Chipotle. Mexican food has always been my fav, even though I knew I would regret it later. All that cheese, sour cream, salsa, beans, etc. taste so good, but is not GERD or colitis friendly. Knowing all this I decided to go to Chipotle anyway for lunch. As I was standing in line, trying to figure out what combination of ingredients will not make me suffer for the remainder of my work day, I started having bad thoughts. As I got closer to order I was thinking; I should leave . . . I’m gonna regret this. . . . this is going to be BAD!! And then I heard, “How can I help you” . . I responded, “Yes can I have a bowl” . . . while shaking my head. I could not deny the Chipotle, so I ordered a bowl with the below items:
- White rice
- A little bit of Black beans
- A little bit of cheese
Taste: Of course it was delicious!
Colitis friendly: Not really, If it was just rice and chicken that would have been great for my tummy. The tomatoes, black beans, and cheese are a no go, but I asked for less than the normal portion. As a result my stomach wasn’t bad. Did not experience any diarrhea or bloating, so I was happy. But even if I didn’t have any tummywoes, Chipotle can be a daily meal right? 🙂
Submission for Twenty Somethings Edition – 1
This past Friday I had a follow-up appointment with my GI’s office, I met with a physician assistant (PA) since my GI was unavailable. The PA was an older woman, and I could tell she was nervous, and inside I slowly rolled my eyes and thought, maybe I should have waited to meet with my GI. Nevertheless, I followed doctor’s orders and visited the office within a week after increasing my Apriso intake as directed. I told the PA that I started feeling better with this change in prescription, but some symptoms remained which raised concerns. After the PA wrote down my symptoms she stepped out to get a opinion from another GI and I heard a familiar voice. When she returned she told me how she bumped into my GI in the hallway all scrubbed up for surgery, and he told her to give me an additional prescription. So until my 3 month colonoscopy follow-up appointment next month, I will be taking Budesonide 3 times a day. With this prescription, it states to take it in the morning, but I am already taking 5 pills before noon, so it’s my early afternoon stash. My grand total of daily pills is now, drum roll . . . . . 11 pills every freaking day!!
I have now accepted that I have an illness. My pillbox is full and if my GI was to say we have to add another prescription, I have to say NO for my sanity and bank account. To see the amount of pills I take daily is insane! I have purposely split my prescriptions between two pharmacies because I am refilling almost every two weeks and I do not want to be “that girl” or for them to know me on a first name basis. I know it’s silly, but I started to noticed a look of pity from one pharmacist whenever I picked up a prescription. . . sighs
The funny thing is that I have been getting so many compliments lately. “Oh your skin looks so beautiful”, “you’re losing weight!”, and “You seem more chipper”. In regards to my skin looking beautiful I’m not surprised, because all day I’m drinking water to take my pills and it’s the only drink that will not irritate my stomach. Losing weight has not been a choice. There are days when I have an appetite and I eat everything in sight, and other days I am forcing myself to eat. I will admit that I do have more energy and have been sleeping better which is one positive result from this medical treatment.
In regards to my diet, the PA stated I should be more concern with my GERD than Colitis. It is a good point, but through my research I have noticed that an acid reflux diet and colitis diet do coincide. She recommended that I keep a food journal. Which I will do, and I am looking for a food journal app. Any suggestions?
Otherwise, I remain hopeful and taking one day at a time 😊
For lunch I decided to visit one of my old favorite spots, &pizza! If they delivered I would be in trouble 🙂 unfortunately, ordering my favorite pizza “The Maverick” meaty and cheese paradise will no longer do . . so I made my own pizza. The one thing I love about &pizza is their variety of healthy ingredients, and the option of glutton free dough! Today I created the following pizza:
- gluten-free dough
- basil spinach pesto sauce
- homemade mozzarella
- roasted peppers
- shredded chicken
- Topped it off with oregano oil and black pepper.
I took a photo! 🙂
Taste: It wasn’t bad, but I did miss the traditional tomato pizza sauce.
Colitis friendly: Recently discovered mushrooms are not colitis friendly, I don’t think I can let them go, got mushrooms anyway lol. Mozzarella, eh . . it’s pizza, gotta have the cheese. I did have to go to the bathroom maybe an hour or two after, but no diarrhea, cramps, or bloating. Just a regular #2 . . Iol This will have to be a once in a while lunch . ,
I feel bad for you guys that don’t know &pizza, it’s a recent phenomenon in the DC metro area. Check out their website http://andpizza.com/ and maybe one day they will be in a city near you.
An IBD is basically your body rejecting the food you consume, and with colitis it really doesn’t matter what you eat, you can still suffer. The fascinating thing about UC is that most healthy foods are not colitis friendly. Who knew that eating a salad could be bad for you. I used to eat a salad multiple times a week for lunch and loaded it with raw peppers, mushrooms, broccoli, cauliflower, etc. I have now discovered that eating raw vegetables is not good for UC and is listed as foods to avoid. Also, my favorite cereal used to be strawberry frosted mini-wheats, not anymore, because high-fiber foods are not colitis friendly. Took my box of mini-wheats to work and put it up for grabs 😦
I found a list of foods to avoid when you have UC from healthline.com and I’m shocked! Eating healthy, is not “healthy” for everyone. Check out the list below:
- Whole grain, bread, cereals, and pastas
- Brown rice and other whole grains
- Nuts and seeds
- Dried peas, beans, and lentils
- Raw seeded fruits, nothing from the berry family
- Avoid all raw or under-cooked vegetables, including corn and mushrooms
- Popcorn and coconut
So what can I eat? Below are a few things that are considered colitis friendly:
- White bread without seeds
- White pasta, noodles, rice
- Crackers and cereal made with refined white flour
- Canned or cooked fruits
- Tender, soft lean meats, fish
Check out the full article at healthline.com at http://www.healthline.com/health-slideshow/ulcerative-colitis-foods-avoid
I have an appointment with my GI later this week, and I plan to ask for resources or just a guide on creating a meal plan for my UC and acid reflux. I have gone somewhat cold turkey since I’ve been diagnosed. I have tried to avoid soda and citrus juices, working on it. But I have refrained from consuming alcoholic drinks and raw vegetables. sighs . . it’s a struggle.
Since I had to increase my prescription intake, I ran out of pills a lot sooner than expected. And with the impending “snowstorm” (fingers crossed for a snow day) I don’t want to be stuck in my apartment with no pills. My original prescription was filled in another city so I thought I could transfer my prescription online for Giant pharmacy , FAIL! Thankfully, I called with only a day worth of pills remaining. I got my prescription transferred to the Giant in walking distance of my apt but they told me they do not have my prescription in stock.
I called another Giant pharmacy, was put on hold forever!!! Finally spoke to someone, they had no idea what I was asking about and thought I said amoxicillin?!?! wtf?!? lol Was put on hold again, spoke to a pharmacist and she said “Yes we have it in stock.” I was so happy! , then I asked when can I pick it up? . . and heard a click . . . sighs. Luckily this was the Giant near my job.
Since I couldn’t focus on work anymore and it was 20 minutes until COB for me, I asked my manager if I could leave early. I told her why and she said, “oh, I drive by the Giant on my way home, I can give you a ride. No point in you walking when its snowing”. So sweet! she even offered to wait for me, but I said I’m fine 🙂
Walked to the pharmacy and my prescription was ready, I was overjoyed! Then I thought, I guess it only took 2 seconds to fill my prescription because they gave me the whole bottle. It’s crazy to know I’ll be done with this bottle in less than a month . . . sighs . . .
Ulcerative colitis (UC) is not as well known as Crohn’s disease, but both are Inflammatory Bowel Diseases (IBD).
According to MayoClinc.org, Inflammatory bowel disease (IBD) is chronic inflammation of all or part of your digestive tract. IBD primarily includes ulcerative colitis and Crohn’s disease. Both usually involve severe diarrhea, pain, fatigue and weight loss. IBD can be debilitating and sometimes leads to life-threatening complications.
Every since I have been diagnosed, the Crohn’s and Colitis Foundation of America (CCFA) has been the most useful source of information for me about colitis. CCFA defines Ulcerative colitis as:
“Ulcerative colitis is a chronic disease of the large intestine, also known as the colon, in which the lining of the colon becomes inflamed and develops tiny open sores, or ulcers, that produce pus and mucous. The combination of inflammation and ulceration can cause abdominal discomfort and frequent emptying of the colon.
Ulcerative colitis is the result of an abnormal response by your body’s immune system. Normally, the cells and proteins that make up the immune system protect you from infection. In people with IBD, however, the immune system mistakes food, bacteria, and other materials in the intestine for foreign or invading substances. When this happens, the body sends white blood cells into the lining of the intestines, where they produce chronic inflammation and ulcerations.” (CCFA.org)
So yeah . . . that’s what I have, good ole Ulcerative Colitis (UC) . . 😦 Remaining hopeful.