The past six weeks have been insanely busy and I never want to experience it again lol. Since the first week of May I haven’t had a free weekend since April. From a friend’s bachelorette and wedding, mom’s graduation, moving, and mini vacay to Jamaica I’m officially spent physically and my bank account is dry. But I’m not complaining, I can go on a ramen diet, I’m excited that I can eat ramen again lol. It’s crazy to think two years ago I would’ve declined majority of those events due to my poor health. So I have been grateful to be invited and healthy enough to go to each event. I am afraid to miss out. I feel like for almost two years I was at such a low health wise and mentally that I checked out of my life, I was in a fog . . This year is the first with no meds and complete remission, so I’m trying to do everything before this good health goes away *knock on wood*.
Even though IBD-wise I have had a clean slate this year, I’ve been sick in many other ways. For example my two spells with Tonsillitis this year, last time I had it was 20 years ago. I saw an ENT doctor and he stated if it happens five more times this year, then I’ll suggest you get your tonsils removed . .. WTH?!? In addition to my tonsils my teeth have been horrendous, still paying off dental work from last year, getting two crowns and a root canal is no joke. Thinking about getting a 2nd job to pay off debt, but I’m scared the stress and physicalitly of working two jobs would be too much for my body. I’ve had this random craving for ginger ale, would drink it everyday if I could. . . last time I had such cravings it was to help with my stomach and shortly after I was admitted to the hospital. I hope this is not an early sign of a flare up, fingers crossed.
This year I plan to be positive everyday, no matter the situation. Can’t be sad when I’m alive for another day with clothes on my back and a roof over my head.
I found this cool idea of the “Happy Jar” where you write something good that happens each day for a year, and at the end of year you get to read all the good things in your life for the past year. I kind of wished I had done a happy jar in 2015, which was one of the most depressing years of my life. I might have been in better moods if I had forced myself to sit down everyday and write something positive about the day.
The first week of January 2016 was hard, very stressful at the job and glad its over. But positive things from this week has been; re-connecting with friends I haven’t seen in a while, and I just paid a security deposit on my first place, no roomies! It’s a great feeling. With this new place I will be moving to a new state (but not really far away) and area where I know no one. I’m officially starting a new chapter, it’s exciting.
Also, I bought some powerball lottery tickets, hopefully my good luck lately doesn’t run out too soon 😉
The past 3 weeks have been a new low for me, but I am happy to say for the past 24 hours it has been a good day! And this beautiful weather is totally matching my mood. I’ve been out running errands and even attended my first crohn’s/colitis support group through the CCFA. It was a very positive experience, and to meet other young people of difference races with this disease, it was very comforting. It was also great to talk about symptoms in graphic detail without grossing people out, that was pretty cool. I plan to keep attending and the facilitator stated how today was a smaller turn out, so it’s exciting that it might be a larger group next time.
For my fellow IBDers or parents that have children with IBD, I highly advise that you look into CCFA local chapters and their support groups. Writing this blog has been a wonderful experience and my online community has been very supportive, but I will admit, meeting people in your area that have the same disease is even better. Check out the link below.
Lastly, I have the song “Whistle while you work it” stuck in my head. I heard it on Pandora recently and it put a smile on my face this past week. I think it’s an uplifting song and I love the beat. Just wanted to share 🙂
℗ 2015 Atlantic Recording Corporation for the United States and WEA International Inc
Through my research I was surprised to discover that many “IBDers” are young, like very young, under the age of 18. According to CCFA.org, approximately 1.4 million Americans have either Crohn’s disease or ulcerative colitis. That number is almost evenly split between the two conditions, and one in ten IBD patients are under the age of 18.
I’ll admit having an Inflammatory Bowel Disease can be somewhat embarrassing. Even what IBD stands for might make people chuckle and I’m okay with that, but I am 28. Can you imagine being a teenager and always having gas, the fear of having an accident, or just having people laugh in your face when you explain what IBD stands for? I couldn’t imagine . . . but luckily they are not alone. Camp Oasis that was established 10 years ago by the CCFA, is a summer camp for children that suffer from an IBD. This co-ed residential summer camp program enriches the lives of children with Crohn’s disease and ulcerative colitis by providing them with a safe and supportive camp community. For more information please visit http://www.ccfa.org/get-involved/camp-oasis/ and check out the video below.
Another great outlet for young IBDers is the website, “Me and IBD” http://www.meandibd.org/ by Crohn’s and Colitis UK. it’s an online community that provides support for young adults on how to deal with image, friendships, relationships, and many other issues they might face living with an IBD. Check out her story below.
After reading stories of young people with an IBD and how they cope daily with this disease, I can only be positive. Remaining hopeful 🙂
Since my last few posts have been very gloomy and stressful, I have to lighten the mood. I found some funny images and video that all people that suffer from an IBD can smile at.
I feel like lately it’s been a road of frustration and anxiety for me, but I need to stop and be fortunate for the positives. Even though I complain a lot about my prescriptions, I am starting to feel better, so something is working and I need to be grateful. Enjoy below 🙂
I wish I had this reaction when I was told I have stomach ulcers. 🙂