Demand RESPECT . . .

When you’re sick you would expect out of all people your doctor would be the most compassionate, but it’s not always the case.  As a patient you spend so much of your time and money to seek professional help to get healthy, but then you start to realize your illness is just a paycheck for some. How disturbing and disrespectful! So . . . since they view your illness and regular appointments as transactions, well I need to view them as a business too.  I am taking time out of my day and money out of my pockets to see a doctor for a service. I expect quality service as soon as I walk in. If I continuously receive bad service I will take my money and time elsewhere. . I know this is easier said than done especially when seeing a GI since there are so few GI doctors, but as patients we have to demand respect, and our questions/concerns should be taken seriously. We’re NOT craving for attention, we’re sick!!!

I found the below clip from the Golden Girls on my fbook newsfeed, it spoke volumes for me and has given me new-found confidence whenever I visit a doctor. Please watch and share!

Chaos at the GI’s office . . . . part 2!

After my GI’s annoying behavior it was just me and the PA  again. She goes over all my medications and told me how for certain prescriptions I am only supposed to take as needed. I cocked my head to the side and asked,  “why wasn’t that stated in the prescription instructions?” Her response was, “its only supposed to be taken as needed” I said “okay!” since I could sense some tension.  But I did ask about my the GI’s request to see me weekly and she stated, “Only come as needed” I said “Oh really?” with much sarcasm. .  . . I was soo over it, and ready to go.

Since they were still waiting on my blood work for the hepatitis test, the PA brought up that I need to also be tested for TB . Unfortunately, discussing when to get the PPD placement turned into another battle. When you get tested for TB  you have to come back within 48-72 hours and I am already taking leave on Friday to see my nutritionist, so I suggested next week would be better. She asked why can’t you come in Friday, I stated I’m already taking a half day and my nutritionist is not in this area. Her response was, “Well you need to find a nutritionist that’s closer!” I quickly stated how my primary physician recommend her, but then I stopped myself. Why was I explaining myself to this woman? It is really none of her business. So I thought, how can we resolve this since she’s persistent on me getting this TB test done this week? I looked at her and said, I can come Friday if it’s before work. She suggested 7:30 am, I said SURE!. She jokingly said,  “make sure you’re here on time, because 7:30 is a much earlier start time for Ms. Marie”.  I wanted to say I don’t give a damn to be honest, it’s her job and I’ll be on my way to mine. . .  But I did not say that,  instead I said no worries!  with a big smile :), because I was finally leaving!! And of course I have to come back next week to discuss the results of the blood work and TB test. Once they receive those results, the new discussion will be whether I’ll be starting anti-TNF vs Immunemodulator agents. Or trying systemic steroid treatments.

After next week they will need to find me to make an appointment because if this happens again, I’ll start looking elsewhere. Capital Digestive Care needs to get their shit together. Strike 1!

This has been the most annoying week and being on prednisone doesn’t help. I am highly irritable and pmsing. I apologize in advance to anyone that crosses my path for the next two days lol Thank goodness for the long holiday weekend, it is much needed!

Chaos at the GI’s office . . . . . .

Disclaimer: Strong language ahead, it’s about to get real lol

Sighs . . . . . . . . .  . . . . . . . I am still confused about what happened this morning at my GI’s office. I knew coming in that I would be meeting with his physician assistant (PA) instead, which I was not too thrilled about.  My last experience with her was interesting.  When the bloody stools first returned I sent an e-mail via the patient portal stating “My period started earlier this week and I noticed for the first time in a month bloody stools have returned” I was trying to find out if there was a connection between menstrual cycles and flare-ups. Her response was, “are you sure it’s not blood from your uterus?” . . . . I guess she never used a tampon? . . .

Anyway,  I was not excited to meet with her and I quickly realized there had been no communication between her and my GI on the follow-up I had with him last week. I told her everything I told him, but she was thorough.  I told her how my GI wanted to know of any changes in my bowel movements since the start of taking the Apriso again.  I said no diarrhea, but I have had a few bloody stools since my hospital discharge. The PA wanted to know the date and time I had these bowel movements, and luckily I am just as anal as she is and tracked every bloody stool I have had since being discharged, which has only been 3 times! A BIG improvement! I am not complaining! Prior to my hospital stay, it was 6 weeks of bloody stools multiple times a day . . . I am a much happier and healthier person right now.

So after telling her every symptom I have had  since being discharged, she leaves to report all this information to my GI (who already knows!). She brings him in, he looks completely flustered and stressed, and I honestly believe he didn’t recognize me. Maybe it was because my hairstyle changed? last week it was straight and this week it’s big and full of curls (trying to give him the benefit of doubt). As she tells him everything and even mention the FODMAP diet I started, he looks at me and said “You’re getting better, you’re looking better,  don’t worry so much, you’re fine!” I gave him a stern look, and quickly shut my mouth and didn’t say a word! I was mad and wanted to say “What the fuck is going on?” You were the one who told me that you needed to see me EVERY week!, Don’t treat me like I’m an hypochondriac, or that I’m worrying too much, you told me to come back! Okay asshole” That’s what I wanted to say, but I didn’t . . . I just sat there and wanted to get the hell out of there.

For the past couple of months I have praised my GI for his services. I value doctors that prefer to have a conversation with their patients, and we always had meaningful, in-depth,  and great conversations about my health and I could tell that he cared. So I was very surprised and disappointed by his demeanor today. And I think he could tell,  because when I was leaving, he tapped me on the shoulder saying “Krystal we’re going to get you better” I gave him a half smile and thought, Oh now he remembers me!

To be continued . . . . sorry this is a long story lol Will post part 2 tomorrow.