Lost a fight with onion rings . . .

So I know eating fried food is never a good decision when you have IBD, but whenever I visit my mother she never has safe food for me to eat and I was too broke to buy anything. Late in the evening I was still hungry and didn’t think the frozen Nathan’s onion rings that I’ve had before would hurt, I was soo wrong. After 20 minutes  my stomach was sooo tight and I felt so nauseous. Then the stomach cramps started, I felt miserable for a good 2 hours. Exactly a week later I had my first experience with food posioning.

Now as I sit waiting to see my GI for a follow up and realizing I’ve been on Humira for 7 months and still have symptoms, I’m starting to wonder will anything work? 

Deja Vu . . .

I left work yesterday because of stomach pains, good ole cramps.  Bleeding has been back and looks like it won’t go away until I start some new meds or go back to my dear friend Prednisone! The bleeding came back shortly after I weaned off the drug . . I think my GI lied to me when he said I was in remission. . . Is it normal for it be so short lived? 1 month after colonoscopy symptoms came back . . . sighs . . Exactly a year ago I was experiencing stomach cramps and other similar symptoms. Those symptoms eventually got worse during the month of March which led to my first ever hospital stay last April. April 2015 will always be a permanent memory in time.  I hope I won’t be going back to the hospital anytime soon.

I guess my Crohn’s is definitely moderate-severe, I’m no longer considered a mild case. Been on Humira for the past 5 months has not been my saving grace since it worked 3 out of the 5 months. So what’s the next step? More Humira shots? Or the forbidden word in my vocabulary, Remicade! I’ve heard Remicade has done amazing things and my GI has mentioned it more than once,  but I don’t like the idea of sitting in the hospital for 3-4 hours hooked to an IV, sounds like chemo therapy. Will I be in a room with cancer patients? . . gees, how depressing. I’ll find out for sure the next steps when I see my GI in two weeks. The conversation with my GI will probably sound like this, “Krystal why didn’t you inform me as soon as the bleeding started? You should have came to see me.” How’s the job?  Are you stressed? You better not be stressed, I’ve told you, you have to reduce your stress”. My responses will probably be, “I’m sorry, you’re right I just don’t want any new meds. Job is crappy and I’m beyond stressed, but I moved closer to reduce the stress of commuting . .  can I get points for that?!”

As always, living one day at a time and remaining hopeful.