I think I’m an amazing actress! For the past month I have been bleeding everyday, severe bloating often, severe fatigue, and insomnia but somehow I am able to commute and work 40 hours a week, all with a smile on my face. I should win an Oscar because I don’t believe the average person can do that. I’m surprised no one at the new job has asked if I’m okay, but I guess I use all the energy I have during the work day and pass out when I get home on my bad days.
I am no longer afraid of Humira, I now look forward to it! Anything to make me feel better. Trying to clean my room for the past month has been a struggle, the last time it was this messy was right before I was admitted. I just don’t have the energy. The other day I had to lay down after taking a shower, and last night I woke up around 3am still in my work clothes and laptop in my lap. Unfortunately, this is becoming a regular thing, I’m so exhausted.
I finally spoke with my Humira Ambassador, she seems really nice and helpful and sent me my Humira welcome package. When speaking with her she mentioned that I have Crohn’s Disease . . . I immediately corrected her and said, no I have UC . . . she responded by saying on the application my GI’s office submitted, they wrote down Crohn’s. I immediately rolled my eyes and barely paid attention to the rest of the conversation because I was slowly becoming frustrated. When I saw my GI briefly last month, he did mention crohn’s but i assumed he misspoke and confused me with another patient, I guess not. I sent an email to my GI’s office asking what is my diagnosis among other things, OF COURSE the PA responded and stated, I quote, “I completed your paper work with Dr. F. He felt your Colitis was more of a Crohn’s….” What the hell does that mean?!?!? I mean let’s continue to play this game of what illness does Krystal have today! I would appreciate it if he would say, your diagnosis cannot be determined at this time, but you have active IBD, I would respect him more for that. So out of frustration I responded back with the below message, a bit stern but I felt like it needed to be said. And when probation ends at the new job, my first request for leave will be to see a new GI.
I find it very surprising that Dr. F all of a sudden believes I have crohn’s disease, I think he might have me confused with another patient, which is definitely possible since prior to August 31 I have not seen him since I was discharged. In the hospital Dr. H stated that I have crohn’s, but Dr. F was quick to disagree. I guess I don’t understand how my diagnosis changes within months without any additional procedures since my stay in the hospital this past April. I understand that at this stage the treatment is probably the same for both conditions, but it is important for me to know what I have, or if Dr. F does not know, just tell me i’m undiagnosed with active IBD. I don’t like the idea of my GI guessing what I have, or changing my diagnosis every few months just because. I know my case is considered mild (is that still true?), but I have never had to take 10 pills a day or be admitted to a hospital ever before. My life has completely changed in the past 9 months and it would be nice if I didn’t feel like I’m the only one taking my illness seriously.