IBD research studies?

Would you participate in an IBD research study? This might be silly, but I’ve always felt like I’m not sick enough to participate. Even though I was in the hospital for about 5 days earlier this year. Since I do not have a severe case, I don’t want a scientist to waste time on little ole me . . . or maybe it’s fear realizing I have a DISEASE and doctors don’t know what the hell is going on?!?!? . . I think it’s the latter lol

If I was to participate in  a study, there are two that I found of great interest, 23andme and Celest Study who reached out to me and I decided to share with you all. Both seem easy/convenient and looking for people with IBD. Has anyone ever tried one of the studies? More information on both below.

I love this 23andme video,  a true look into the life of an IBDer.

 

celest study

Celest Study

Men and women age 18-75 years old who have moderately to severely active Crohn’s disease, and who have inadequately responded to or are intolerant to anti-TNF therapy, are invited to see if they may qualify for the Celest Study. The purpose of this medical research study is to evaluate the safety and effectiveness of an investigational oral medication. Each individual will be evaluated to determine his or her eligibility.The Celest Study is currently enrolling patients with moderately to severely active Crohn’s disease. Check out www.celeststudy.com/TummyWoes for more information.

 

 

 

5 thoughts on “IBD research studies?

  1. I’ve participated in two studies run through my local hospital when I was on the border of severe, I.e., high moderate to low severe depending on who you talked to. (It felt severe.) The hospital staff were great and really looked after me well.

    Studies run through hospitals are very high quality. They have to pass through strict test procedures approvals and human research ethics approvals. They use scientific method so test drug responses of one group against those taking a placebo, I.e., high quality research.

    In one of the studies I was on they were part of a worldwide study for a European drug comapany. This seems to be typical. Check out Centre Watch. I found that you need to contact your local hospital directly rather than go through the centre watch contact system.

    Liked by 1 person

  2. I think I’d be more inclined to participate in 23andMe, because genetics research is helpful in developing drug therapies that are more likely to be effective, whereas the celest study looks more like a clinical trial? I just started Cimzia, so I’m not ready to become a guinea pig just yet 🙂

    Liked by 2 people

    1. I wanted to try 23andMe but I’m ineligible because I live in MD, it’s weird. In re:Celest, I understand, but I guess if you’ve tried almost everything and nothing worked why not try this new drug. If humira doesn’t work for me I have so many more options to look forward to! so exciting! (true sarcasm)

      Liked by 1 person

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