I saw my GI on Monday for my post hospital follow-up. I think my GI is a hard working man, he looked just as tired and stressed as i was or maybe because it was an 8:00 am appointment? 🙂 Anyway, he reviewed my clinical summary from the hospital and was surprised that the hospital GI removed Apriso from my medications. Since it was the only mesalamine medication I was taking, he stated we will need to put you back on that medication. I immediately asked why since the GI at the hospital stated it didn’t work. He responded, “I think you have Ulcerative Colitis, and you’re currently taking 40mg of prednisone, I want to get you off the prednisone sooner than later. We need to do a trial and error and find your long term drug.” So far 2 out of 3 say I have UC , I feel like I’m getting closer to a confirmed diagnosis, yay!!
Then we talked about future treatment. He brought up Humira and Remicade again, but stated he wants to try an immune modulator instead. In the meantime he wants me to get tested for Hepatitis and see me every week?!?! I said “What!” He said we have to tackle this head on, I don’t want you to go back to the hospital.
Sighs . . it’s bittersweet. I’m fortunate to have a GI that cares, but my PTO hours are getting low. And I can’t afford these co-pays, but I am getting closer to my out of pocket maximum with Cigna!! So once I hit that amount it should be easier? *fingers crossed*
As always I remain hopeful, taking one day at a time 🙂