Hospital follow-up with GI . . . .

I saw my GI on Monday for my post hospital follow-up. I think my GI is a hard working man, he looked just as tired and stressed as i was or maybe because it was an 8:00 am appointment? ūüôā Anyway, he reviewed my clinical summary from the hospital and was surprised that the hospital GI removed Apriso from my medications. ¬†Since it was the only mesalamine medication I was taking, he stated we will need to put you back on that medication. ¬†I immediately asked why since the GI at the hospital stated it didn’t work. He responded, “I think you have Ulcerative Colitis, and you’re currently taking 40mg of prednisone, I want to get you off the prednisone¬†sooner than later. ¬†We need to do a trial and error and find your long term drug.” So far 2 out of 3 say I have UC , I feel like I’m getting closer to a confirmed diagnosis, yay!!

Then we talked about future treatment. He brought up Humira and ¬†Remicade again, but stated he wants to try an immune modulator¬†instead. In the meantime¬†he¬†wants me to get tested for Hepatitis and see me every week?!?! I said “What!” He said we have to tackle this head on, I don’t want you to go back to the hospital.

Sighs . . it’s bittersweet. I’m fortunate to have a GI that cares, but my PTO hours are getting low. And I can’t afford these co-pays, but I am getting closer to my out of pocket maximum with Cigna!! So once I hit that amount it should be easier? *fingers crossed*

As always I remain hopeful, taking one day at a time ūüôā

3 Comments »

  1. Hey! I got your comment on my UC blog, which led me to yours. I notice you also live in Maryland. Right now I am dealing with total douchebag GI docs in the Bel Air/Havre de Grace area and I am trying to find a decent one. Since you mention you found a good GI doc in this post, I wonder what area are you in?

    Also, I just wanted to say it is nice to “meet” you. This IBD shit…we need all the support we can get. It helps me to read through other people’s experiences.

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    • Hi! Nice to “meet” you too! I live in Montgomery County and my GI practices with the Capital Digestive Care center http://www.capitaldigestivecare.com/ they serve the DC metro area. One of my friend’s younger sister was diagnosed with Crohn’s 7 years ago, she stated the John Hopkins IBD program http://www.hopkinsmedicine.org/inflammatory_bowel_disease_center/ was very helpful for her, and that is slightly closer for you. I’ll reach out to her and see if she knows any GIs closer to your area.

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      • Thank you so much! I have heard about John Hopkins, but I am pretty sure my insurance will not cover that. I have mostly been using the Doctors with Upper Chesapeake Health…but I feel like they could really not care less about my colon or anything else related to me…besides if I can pay my bill or not. There is one guy who is alright, but generally, all they do is throw drugs at me.

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