Steroids?!?!? . . . misdiagnosis?!?! . . Huh?!?

I swear “Aunt Flo” visited and stayed for the entire month of February. I was extremely bloated and eating everything in sight, and of course my clothes started to fit tighter.  I just assumed I’m pmsing, and because the weather has been horrid lately, I’m just no longer active. So it makes sense that i might have gained weight. I do not know for sure because I do not own a scale and refuse to buy one! But what made me raise an eyebrow was the day I could not remove my rings. I recall standing over the sink lubricating my finger with lotion and whatever else I could grab to get the rings off my finger. After 20 minutes I was successful. I know having an IBD your weight will always fluctuate, and at times it is difficult to gain weight, but never have my hands swell. It raised a flag . . .

Yesterday as I was preparing like it was a job interview for my appointment with my GI, I logged into my patient portal to review the summary of my diagnosis and list of medications. The one good thing about the Capital Digestive Center is that every patient is provided a log-in into the patient portal where it lists your medical history, summary of your past appointments, scheduled future appointments, and your current medications. While reviewing this information I’m writing my list of symptoms, questions to ask, concerns, etc. and then I decided to Google my medications. My most recent prescription is Budesonide. As I typed Budesonide,  the first thing that pops up is that it’s a steroid. Well got damn! How am I just discovering this . . . why was I not informed?!?!? I mean maybe this is the reason why I’ve gained weight recently, right?

I don’t know how to react because I’m upset that I wasn’t informed, but I will admit ever since I started taking Budesonide I have felt better, and some symptoms have gone away.  I do recall my GI stating I will be taking this medication temporarily, but I still should have been informed. After reading other IBD blogs and forums it seems like many prefer Budesonide over Presdione aka “the devil”, the name many called it.  But what raised another flag was that this drug is usually prescribed for people that have Crohn’s disease . . . so which IBD do I have?!?!? I was told colitis, but since Budesonide has improved my condition maybe I have Crohn’s. . . UGH!! . . sighs . .

This has been the most frustrating 3 months ever! lol I feel sorry for my GI, I have a lot to say when I see him.  . .

6 thoughts on “Steroids?!?!? . . . misdiagnosis?!?! . . Huh?!?

    1. I’m still trying to figure out my diet. I’ve been keeping a mental food journal for the past two months, but find it difficult to create a diet since I have GERD and colitis. I have gone cold turkey on alcoholic drinks, soda, acidic juices, anything tomato based, raw vegetables, and anything high fiber.

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      1. Then Apple cider vinegar and cabbage will be your best friends. Also try sleeping on your left side. See is that helps

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  1. I know it’s terrible. I have the same issues. Actually I have thousands of clothes all in different sizes as my weight changes so often…

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