This past Friday I had a follow-up appointment with my GI’s office, I met with a physician assistant (PA) since my GI was unavailable. The PA was an older woman, and I could tell she was nervous, and inside I slowly rolled my eyes and thought, maybe I should have waited to meet with my GI. Nevertheless, I followed doctor’s orders and visited the office within a week after increasing my Apriso intake as directed. I told the PA that I started feeling better with this change in prescription, but some symptoms remained which raised concerns. After the PA wrote down my symptoms she stepped out to get a opinion from another GI and I heard a familiar voice. When she returned she told me how she bumped into my GI in the hallway all scrubbed up for surgery, and he told her to give me an additional prescription. So until my 3 month colonoscopy follow-up appointment next month, I will be taking Budesonide 3 times a day. With this prescription, it states to take it in the morning, but I am already taking 5 pills before noon, so it’s my early afternoon stash. My grand total of daily pills is now, drum roll . . . . . 11 pills every freaking day!!
I have now accepted that I have an illness. My pillbox is full and if my GI was to say we have to add another prescription, I have to say NO for my sanity and bank account. To see the amount of pills I take daily is insane! I have purposely split my prescriptions between two pharmacies because I am refilling almost every two weeks and I do not want to be “that girl” or for them to know me on a first name basis. I know it’s silly, but I started to noticed a look of pity from one pharmacist whenever I picked up a prescription. . . sighs
The funny thing is that I have been getting so many compliments lately. “Oh your skin looks so beautiful”, “you’re losing weight!”, and “You seem more chipper”. In regards to my skin looking beautiful I’m not surprised, because all day I’m drinking water to take my pills and it’s the only drink that will not irritate my stomach. Losing weight has not been a choice. There are days when I have an appetite and I eat everything in sight, and other days I am forcing myself to eat. I will admit that I do have more energy and have been sleeping better which is one positive result from this medical treatment.
In regards to my diet, the PA stated I should be more concern with my GERD than Colitis. It is a good point, but through my research I have noticed that an acid reflux diet and colitis diet do coincide. She recommended that I keep a food journal. Which I will do, and I am looking for a food journal app. Any suggestions?
Otherwise, I remain hopeful and taking one day at a time 😊